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Monday 14 June 2010 |
Our AimVital medical research costs a lot of money and the Rett Syndrome Australian Research Fund (run by a group of volunteers who have daughters with Rett Syndrome) organize Angel week annually when angels will be sold to raise funds. Angel ornaments $5, key rings $5, pins $5 and wristbands $3 are sold at Ed Harry Menswear Stores and Mr Minit Stores across Australia in an effort to keep the momentum for groundbreaking research moving at a pace. Our Goal
In anticipation of such a breakthrough, the Australian Research Team has forged collaborative research links with other groups in Australia and around the world with a view to being able to undertake clinical drug trials in the next few years.
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Our long term dream is that some day we may be able to have newborn screening for Rett Syndrome, and then be able to start preventative treatments even before the girls show any signs of the disease.
Patrons of theLatest News
Barb McKellar running the Gold Coast Half Marathon
On Sunday the 4th of July 2010, Barb McKellar will be participating in the Gold Coast Half Marathon to raise awareness and money for the Rett Syndrome Australian Research Fund. Please help Barb along on her 21.0975km run by donating to the fund. If you use the button below, your donation will be recorded against the marathon and will let Barb know you are behind her !
Brett Aitkens little angel "Ashli" Passes Away
In loving memory of Ashli Aitken who passed away on Sunday 14 June 2009.
Our deepest sympathy goes to the Aitken and Allen families.
Our thoughts and prayers are with you at this difficult time.
Kimberley Mallan Runs for Rett Syndrome
On the 19th April Kimberley ran in the Canberra Marathon to help raise awareness and money for the Rett Syndrome Australian Research Fund. The inspiration for completing the 42 km run comes from my good friend Kate Jennings, a young girl with Rett Syndrome. I first got to know Kate and her family in 2000 when I worked as one of a team of therapists helping Kate overcome her disabilities so that she could attend a mainstream school to develop her academic and social life.
Canberra Marathon Web Site
Kimberley's bib number was F364.
Hand In Your Old Mobile Phones for cash to RSARF
Aussie Recycling Program
Do you have draws with unused mobile phones? Please read on and see how they can help raise funds.
Full Details (Word doc)
On Line Donations / Purchases
All Donations and Angel Decorations purchases can now be made online using PayPal secure payment methods.
For donations click the "Donate" button located on every page of this web site.
For Angel Merchandise, navigate to the Angel Decorations page to select, add your products to a shopping cart and complete your purchase.
PADDLING FOR HOPE They've done it!!
So far the Paddle For Hope has raised over
$34,000 for research and thank you to all those who have donated funds. Your help is our hope!
On February 23rd, a flotilla of kayaks departed the safe haven of Victoria's south coast and head out into the dangerous waters of Bass Strait en route to Tasmania.
Full details at Paddle for Hope
It features Abbey, one of our Angels in our gallery.
Corporate Christmas Cards.
Anyone who purchases these cards the money will go directly to Professor John Christodoulou at the Children's Hospital.
Or CLICK HERE to order directly from the Childrens Hospital at Westmead web site.
DonationsPlease post all donations
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Sponsors
CHECK FOR EVENTS IN YOUR STATE
An event being held in your state?
Be sure to regularly visit your state's events page to be up to date with what's happening.
If you are organinzing an event, send details to Joe at gdelosa@bigpond.net.au and have it promoted on your state's page.
Note: All events require approval.